Journal article
Participation in People Living With Spinal Cord Injury in Switzerland: Degree and Associated Factors.
- Gross-Hemmi MH Swiss Paraplegic Research, Nottwil, Switzerland. Electronic address: mirja.gross@paraplegie.ch.
- Post MWM University of Groningen, University Medical Center Groningen, Department of Rehabilitation Medicine, Groningen, the Netherlands; Center of Excellence in Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, the Netherlands.
- Bienert S Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
- Chamberlain JD Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
- Hug K REHAB Basel, Basel, Switzerland.
- Jordan X Clinique Romande de Réadaptation, Sion, Switzerland.
- Scheel-Sailer A Swiss Paraplegic Center, Nottwil, Switzerland.
- Weiss A Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
- Brinkhof MWG Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
- 2019-04-27
Published in:
- Archives of physical medicine and rehabilitation. - 2019
Community participation
Rehabilitation
Social participation
Spinal cord injuries
Activities of Daily Living
Adolescent
Adult
Age Factors
Aged
Cross-Sectional Studies
Educational Status
Female
Humans
Leisure Activities
Male
Middle Aged
Sex Factors
Single Person
Social Participation
Spinal Cord Injuries
Surveys and Questionnaires
Switzerland
Work
Young Adult
English
OBJECTIVE
To describe different domains of participation such as productive, leisure and social activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics that are associated with participation in these domains in a large sample of community-dwelling individuals with SCI in Switzerland.
DESIGN
Cross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis and unbiased recursive partitioning were used to identify the predominant associations of sociodemographic and SCI-related characteristics with multiple dimensions of participation.
SETTING
Community.
PARTICIPANTS
Swiss residents aged 16 years or older and living with traumatic or nontraumatic SCI (N=1549).
INTERVENTIONS
Not applicable.
MAIN OUTCOME MEASURE
The USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency, Restrictions, and Satisfaction) to assess key domains of participation (productive, leisure, social).
RESULTS
Frequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities was reduced with distinctive perceived restrictions in work and education, sports, and partner relationships. Domestic leisure activities (65.4%) and maintaining social relationships (76.1%) were those activities most often performed and with least perceived restrictions. Participants were generally satisfied with their current daily life activities. Lower scores across all participation scales were associated with more severe SCI, higher age, being female, not having a partner, and lower level of education.
CONCLUSIONS
This study provides a thorough analysis of participation in major life domains of individuals with SCI in Switzerland. Different risk groups for reduced levels in participation in productive, leisure, and social activities were identified. This population-based evidence is instrumental to the better targeting of rehabilitation and policy interventions that aim to improve community participation.
To describe different domains of participation such as productive, leisure and social activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics that are associated with participation in these domains in a large sample of community-dwelling individuals with SCI in Switzerland.
DESIGN
Cross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis and unbiased recursive partitioning were used to identify the predominant associations of sociodemographic and SCI-related characteristics with multiple dimensions of participation.
SETTING
Community.
PARTICIPANTS
Swiss residents aged 16 years or older and living with traumatic or nontraumatic SCI (N=1549).
INTERVENTIONS
Not applicable.
MAIN OUTCOME MEASURE
The USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency, Restrictions, and Satisfaction) to assess key domains of participation (productive, leisure, social).
RESULTS
Frequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities was reduced with distinctive perceived restrictions in work and education, sports, and partner relationships. Domestic leisure activities (65.4%) and maintaining social relationships (76.1%) were those activities most often performed and with least perceived restrictions. Participants were generally satisfied with their current daily life activities. Lower scores across all participation scales were associated with more severe SCI, higher age, being female, not having a partner, and lower level of education.
CONCLUSIONS
This study provides a thorough analysis of participation in major life domains of individuals with SCI in Switzerland. Different risk groups for reduced levels in participation in productive, leisure, and social activities were identified. This population-based evidence is instrumental to the better targeting of rehabilitation and policy interventions that aim to improve community participation.
- Language
-
- English
- Open access status
- closed
- Identifiers
-
- DOI 10.1016/j.apmr.2019.03.018
- PMID 31026462
- Persistent URL
- https://folia.unifr.ch/global/documents/291968
Statistics
Document views: 26
File downloads: