Journal article
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.
- Kamm CP Department of Neurology, Inselspital, University Hospital Bern and University of Bern, Bern, Switzerland. christian.kamm@luks.ch.
- Barin L Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
- Gobbi C Faculty of Biomedical Sciences, Università Della Svizzera Italiana (USI), 6900, Lugano, Switzerland.
- Pot C Service of Neurology and Neuroscience Research Center, Lausanne University Hospital, and University of Lausanne, Lausanne, Switzerland.
- Calabrese P Behavioral Neurology and Neuropsychology, Division of Molecular and Cognitive Neuroscience, Department of Psychology, University of Basel, Basel, Switzerland.
- Salmen A Department of Neurology, Inselspital, University Hospital Bern and University of Bern, Bern, Switzerland.
- Achtnichts L Department of Neurology, Cantonal Hospital Aarau, Aarau, Switzerland.
- Kesselring J Rehabilitation Centre, Kliniken Valens, Valens, Switzerland.
- Puhan MA Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
- von Wyl V Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
- 2019-10-10
Published in:
- Journal of neurology. - 2020
Diagnosis communication
First diagnostic consultation
Multiple sclerosis
Patient satisfaction
Registries
Shared decision making
Adolescent
Adult
Aged
Child
Child, Preschool
Decision Making, Shared
Female
Follow-Up Studies
Health Care Surveys
Health Communication
Humans
Male
Middle Aged
Multiple Sclerosis
Patient Satisfaction
Physician-Patient Relations
Referral and Consultation
Registries
Retrospective Studies
Switzerland
Young Adult
English
BACKGROUND
Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching.
OBJECTIVE
To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.
METHODS
Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
RESULTS
386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).
CONCLUSIONS
A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching.
OBJECTIVE
To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.
METHODS
Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
RESULTS
386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).
CONCLUSIONS
A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
- Language
-
- English
- Open access status
- closed
- Identifiers
-
- DOI 10.1007/s00415-019-09563-y
- PMID 31595377
- Persistent URL
- https://folia.unifr.ch/global/documents/222601
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